tag:blogger.com,1999:blog-56190106967060450062024-03-13T13:21:31.121-07:00Our Cleft StoryJaimie Lopezhttp://www.blogger.com/profile/15381619505371755779noreply@blogger.comBlogger55125tag:blogger.com,1999:blog-5619010696706045006.post-2375517952173179422020-05-31T13:19:00.000-07:002020-05-31T13:21:10.119-07:007 years old. Updates and Next Steps.The last few years have gone by in a blink! Wyatt is 7 now. He is a funny, observant, intuitive and charming little boy. He is, quite literally, my sunshine.<br />
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The past few years have been really quiet with regard to anything cleft related. There were a few more visits to Cleft Clinic. Here you can see how much he has grown over the past 5 years!<br />
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Wyatt did have his tonsils and adenoids taken out in two separate surgeries (trying to save as much as we could to preserve his speech), his hearing has been closely monitored, and he is still receiving speech therapy.<br />
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Wyatt<span style="background-color: transparent; color: black; display: inline; float: none; font-family: "times new roman"; font-size: 16px; font-style: normal; font-variant: normal; font-weight: 400; letter-spacing: normal; text-align: left; text-decoration: none; text-indent: 0px; text-transform: none; white-space: normal; word-spacing: 0px;"> is coming up to an age where there is more work to be done. </span>At his last visit to cleft clinic it was recommended he have a nasal revision to make his nose a little more symmetrical. We were looking to schedule that this spring but Coronavirus hit and everything was put on hold.<br />
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<span style="background-color: transparent; color: black; display: inline; float: none; font-family: "times new roman"; font-size: 16px; font-style: normal; font-variant: normal; font-weight: 400; letter-spacing: normal; text-align: left; text-decoration: none; text-indent: 0px; text-transform: none; white-space: normal; word-spacing: 0px;">Losing baby teeth and more permanent teeth coming in also means it's time for some dental work. Everything has been changing so fast I reached out to our cleft team just to make sure we are on top of it. It will be interesting to see what recommendations they have for this next year.</span><br />
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I hope to post more updates as things pick up again. For now... be well, take care and stay safe.<br />
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<br />Jaimie Lopezhttp://www.blogger.com/profile/15381619505371755779noreply@blogger.com1tag:blogger.com,1999:blog-5619010696706045006.post-5721361682130851302016-09-24T08:49:00.001-07:002016-09-24T08:49:09.982-07:003rd Annual Cleft Clinic<div class="separator" style="clear: both; text-align: center;">
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Wyatt had Cleft Clinic this week and everything is going really well! We just have a few things to work on this year. His repair is looking good and unless you look closely you might not even notice. It is also working really well (not causing any problems with speech etc.) so there is no need for any surgery for that. Dr. Lacey showed Wyatt how to operate the dental chair this year and Wyatt thought that was awesome!<br />
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Speech is also going great! There are just a couple of things he needs to work on and again most people probably wouldn't even notice any issues. He might even be able to graduate from speech therapy soon.<br />
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There is some hearing loss in one of his ears but replacing the tube in that ear should take care of that.<br />
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His teeth are looking good too. There will be more work to do in this area but not for a few years.<br />
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Wyatt still has huge tonsils and due to some of the negative side effects that come with those his cleft team is recommending they come out. We did everything we could to avoid another surgery but the benefits now outweigh everything else. He will just have the tonsils out and not the adenoids so we can try to limit any impact this might have on his speech. His tonsils could be helping him get the closure he needs and that was one of the reservations we had with taking the tonsils out.<br />
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Cleft Clinic is a busy day visiting with a lot of specialists but has become a fun annual tradition. We enjoy traveling to the University of Minnesota, seeing our friends at the clinic and spending some quality time Mommy and Daddy time with Wyatt.<br />
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Here are a few more pictures from our day:<br />
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<br />Jaimie Lopezhttp://www.blogger.com/profile/15381619505371755779noreply@blogger.com0tag:blogger.com,1999:blog-5619010696706045006.post-3955429808118753192016-02-28T08:05:00.000-08:002016-02-28T08:05:03.399-08:00Amazing GiftThis past October we received an amazing gift from our photographer. We had scheduled to have our family pictures taken with <a href="http://www.sunlitphotography.com/" target="_blank">Sunlit Photography</a> in Stillwater. It was raining but because we drove so far to get there we decided to make the most of it and try to get some pictures anyway. We had a great time and stopped at a malt shop for dinner on our way home. I knew this would be a special memory for our family. I was surprised to wake up the next morning to an email from Abbey letting me know she wasn't going to charge us for the session and was turning it into a Project Molly's Eyes session. Here is a little more about <a href="http://www.sunlitphotography.com/project-mollys-eyes-a-cleft-lip-palate-portraiture-collection/" target="_blank">Project Molly's Eyes</a> and a link to <a href="http://www.sunlitphotography.com/project-mollys-eyes-wyatt/" target="_blank">Our Session</a>.<br />
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Not only is Abbey an amazing photographer but her kindness and generosity are overwhelming. I can't thank her enough for this gift.<br />
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Michael and the kids trying to stay dry under the trees while we waited for our session to start.<br />
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A few pics from our session.<br />
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The after party at the malt shop!<br />
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<br />Jaimie Lopezhttp://www.blogger.com/profile/15381619505371755779noreply@blogger.com0tag:blogger.com,1999:blog-5619010696706045006.post-52513011916870478702016-02-28T07:17:00.000-08:002016-02-28T07:17:21.780-08:00Speech Cont. - Wyatt goes to school!<div class="separator" style="clear: both; text-align: left;">
Wyatt's speech is pretty good but he qualified for another year of speech services through the district and we are happy to take advantage of any extra help. At three years old the kids in our district transition from in-home services to speech group at the local community center. Here we are going to open house to see his classroom and meet his teacher.</div>
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Here's Wyatt on his first day of school! It was 4 weeks shy of his 3rd birthday and I couldn't believe we were sending him off on his own.<br />
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This is Sue! She is his awesome driver.</div>
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Wyatt was really excited to be starting school but a little unsure when he realized we weren't going with him. He was looking to Mom and Dad for encouragement. We reassured him even though we were a little sad and holding back our own tears.<br />
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He even gets to ride the bus home!<br />
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He loves his speech group and has a lot to say about his days.Jaimie Lopezhttp://www.blogger.com/profile/15381619505371755779noreply@blogger.com0tag:blogger.com,1999:blog-5619010696706045006.post-59882355411475485442015-12-15T09:09:00.000-08:002015-12-15T09:09:00.319-08:00Pediatric Dentist Appt & First Visit From The Tooth FairyWyatt had an appointment with the pediatric dentist this week. The great news is he has all his teeth! His "lucky tooth" that is coming in his cleft is actually a tooth. They got some blurry x-rays even though the poor little guy kept gagging and threw up. He is going to need some dental work down the road for his teeth and jaw but we already knew about all that.<br />
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He had something coming through his palate and we were never really sure what it was. (Clefts can cause all kinds of weird things to happen... extra teeth, missing teeth, backwards teeth, etc. You never know what you are going to get!) The guess was a bone spur or small tooth. It didn't show up on the x-ray and the dentist was able to make it move so they decided to pull it out. A little topical and one good pull and that was that. We wondered if the Tooth Fairy would be interested. She was.<br />
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Jaimie Lopezhttp://www.blogger.com/profile/15381619505371755779noreply@blogger.com0tag:blogger.com,1999:blog-5619010696706045006.post-69928988026616279712015-10-18T13:06:00.001-07:002015-10-18T13:09:16.041-07:002nd Annual Cleft Clinic Cleft Clinic was last week! Wyatt goes to clinic once a year to meet with a variety of specialists who help to coordinate his care. We are set up in a room and the cleft team comes by one by one to meet with Wyatt.<br />
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Audiologist & ENT</h4>
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Hearing problems can occur more frequently in children born with clefts so we meet with an ENT and audiologists. We see them both at cleft clinic and follow up with visits to an ENT every six months or so as needed.<br />
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Wyatt had tubes put in when he was 6 months old to help with fluid buildup and infections. When they checked his ears and hearing at clinic his hearing in his right ear was perfect but his tube in his left ear was falling out. He does have mild hearing loss in that ear due to fluid buildup. We are going to have his ears checked again in six weeks and if it isn't cleared up by then he will probably need his tubes replaced.<br />
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One of the questions we had going into the day was whether or not we should have Wyatt's tonsils taken out. He had a severe case of tonsillitis this year and his tonsils have always been huge. The ENT advised against rushing into having his tonsils out. Even though they are huge they haven't cause persistent issues so we will just keep an eye on it. The fact that they are so big could also be helping him get closure for speech. If he needs them out in the future we would have to meet with speech and do scoping (put a camera down his nose) first so they can get a picture of how everything is working in there.<br />
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They take pictures while we are there for his records. </div>
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Pediatric Dentist</h4>
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When we met with the pediatric dentist we learned Wyatt has a cross bite and his upper jaw is smaller on the left side. With his surprise tooth (or "something") that came in in his cleft he has all his teeth!! Yay!<br />
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To help shape his upper jaw we found out he will need an expander around 5 or 6 years old when his permanent teeth come in. It is a device that goes in the roof of his mouth and is attached to the teeth. Some come with a key and for about 2 months we would turn it every few days. It will stay in for approximately 3 to 6 months after that to hold the shape. Expanders look something like this:<br />
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Funny story - Mike went with Wyatt and the Audiologists to the room where they do the hearing testing. On the way back they saw a poster on the wall of an expander and Mike was like, "Wow. What is that?" Little did he know the next doctor we saw would tell us Wyatt would need one! :)<br />
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Orthodontist</h4>
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The orthodontist said everything looks really great. His teeth and the enamel look really good. He has a positive overbite and crowding. They may remove baby teeth early to help his permanent teeth come in straighter. They may also have to remove permanent teeth due to the crowding but that isn't for sure. </div>
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The orthodontist would be the one to put in the expander. It will help to form his upper jaw to match the lower. He said they would probably use the Quad Helix Expander which is the one on the left above. Around expander and bone grafting time they will do a CT scan to get the whole picture. It will allow them to see bone structure, missing teeth, etc. The expander and bone grafting would happen around the same time and everything would be coordinated with speech, etc.<br />
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The orthodontist commented on his monster tonsils. Pretty much everyone does.<br />
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Speech & Language Pathologist</h4>
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Wyatt has been receiving speech services through our school district for the past year. The cleft team also keeps a close eye on his speech development. From the speech evaluation we learned his speech issues are developmental and not cleft related. He does not need private speech therapy at this time. He is making good progress so we will continue what we are doing.<br />
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Plastic Surgeon</h4>
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Wyatt's plastic surgeon wasn't at clinic this time so we saw someone else. It worked out okay because he won't need any surgeries for a while that we know of. The surgeon we saw commented on how great his lip looks. He said he wouldn't consider any surgery until Wyatt is a teenager if that is something he wants. The more surgery you do the more scarring can build up.<br />
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Oral Surgeon</h4>
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The oral surgeon said they don't come into the picture until much later but said Wyatt's facial growth looks normal. The oral surgeon was our last visitor.<br />
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All done! We took a break while they met as a team to discuss Wyatt's case.<br />
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The day ended with us going back for a brief report and any follow up instructions.<br />
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We also got to see Anna before we left!<br />
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All in all it was a good day. We learn something new every time we go. Wyatt did AWESOME! He is getting over a cold and wasn't feeling the best. Even though he would ask if we could go home after every specialist he still did a great job listening and following instructions. We are so proud of him!<br />
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<br />Jaimie Lopezhttp://www.blogger.com/profile/15381619505371755779noreply@blogger.com0tag:blogger.com,1999:blog-5619010696706045006.post-17779352081391774152015-10-13T10:48:00.000-07:002015-10-13T10:48:18.010-07:00Cleft Mom SupportOne of the first things I did after we found out about Wyatt's cleft was join online support groups/boards for parents. I also started this blog as a way of sharing our story. It is through this network of online support I was able to make connections with other mothers of children with clefts.<br />
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These connections have been extremely helpful! It is amazing to me how kind, helpful and compassionate complete strangers can be. Mothers of children with clefts are so eager to offer each other support and advice. There were times I was so overwhelmed or just didn't know what to do and these ladies were there for me with everything from emotional support to tips on how to get Wyatt to eat again after surgery.<br />
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There are a few ladies I am particularly grateful for. They all had little boys around the same time I had Wyatt and it has been fun to keep up with them and their families.<br />
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I was lucky enough to meet one of these wonderful women and her family while on a work trip to Portland last year.<br />
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This post was long overdue! Thank you Heather, Linda and Amy. Don't know what I would do without you.Jaimie Lopezhttp://www.blogger.com/profile/15381619505371755779noreply@blogger.com1tag:blogger.com,1999:blog-5619010696706045006.post-21092466954458370932015-02-09T17:56:00.003-08:002015-02-16T08:49:18.833-08:00Speech After a couple of initial speech visits with Anna from our cleft team at the University of Minnesota last summer we were referred to look into the speech services the school district provides. This was a nice option that would be closer to home. A small team from Early Childhood Special Education (ECSE) came to our house to evaluate Wyatt. He does need help with his speech but would have automatically qualified anyway because of his cleft. His teacher comes to our house once a week. It took Wyatt a while to warm up but now he is happy to see Virginia and the toys and books she brings with her.<br />
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Normally Mike is home for these visits but with Mike off on a field trip with Bella I was able to be home for speech. It was fun to watch him take his seat on the floor with his feet tucked under him waiting patiently for play time with his teacher. They play with different books, puzzles and toys while practicing making sounds and saying words. It is amazing to me how his teacher is able to help him correct his pronunciation through this play and hand gestures. He has his 6 month review tomorrow to check his progress.<br />
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Update:<br />
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Wyatt had his 6 month speech review last week. He is making progress but his teacher said it took him a while to warm up and in the beginning he was really still working on building his vocabulary.<br />
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What they are working on now is his pronunciation. There are certain sounds he makes during speech with help but not on his own naturally. His teacher said he doesn't struggle as much as other cleft affected kids with making certain sounds. She also said she doesn't think he needs private speech at this time. That is the same thing Anna was saying so it was good to hear that confirmed.<br />
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For now they will focus on pronunciation and air flow. Wyatt pushes the air laterally out his cheeks rather than through the front. This can be a hard habit to break. They will continue to work on this by focusing on placement. This is where he puts his tongue and how the air comes out. He needs to bring his tongue up to the teeth to pronounce his t and d's better.<br />
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When he is 3 years old he will be able to better understand these instructions. He will continue to work with the teachers through home visits until he turns 3. He will be evaluated again in the summer to determine if he will still need/qualify for speech services through the district. If he doesn't qualify through the district but we think he still needs help with his speech we can look into private therapy. Next year, if he qualifies through the district he would start one of two programs offered through the district. These would not be in our home. They would be in a more organized setting at the local elementary school or the district center.<br />
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Considering where we started I think everything is going really well. We can understand a lot of what he is trying to say but there are times it is hard to understand. We will stay on top of this and make sure he gets whatever help he needs.Jaimie Lopezhttp://www.blogger.com/profile/15381619505371755779noreply@blogger.com1tag:blogger.com,1999:blog-5619010696706045006.post-39148866103815754742014-12-03T16:18:00.002-08:002014-12-03T16:18:54.144-08:00First Cleft Palate Clinic<div class="separator" style="clear: both; text-align: center;">
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Today was a big day for Wyatt! He went to Cleft
Palate Clinic for his first comprehensive interdisciplinary evaluation and treatment
planning. This will be a yearly activity for him.<br />
<o:p><br /></o:p>Before Wyatt was born we learned we would be working with a cleft team which would consist of a variety of specialists to coordinate his care because clefts involve so many different things. We have met a few of these specialist over the past two years but this was the first time we met with all of them on one day.<br />
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The first thing we did was meet with Dr. Anderson the Program Director. He gave us an overview of the day and asked about any concerns we had. After this brief meeting with Dr. Anderson they took us to our room.<br />
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The specialists would be stopping by one by one throughout the morning to meet with Wyatt.<br />
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The first couple of visitors checked his height and
weight and took pictures.<br />
<br />Then we met with Anna the Cleft Team Coordinator and Speech and
Language Pathologist. We have been working with Anna since before Wyatt was
born. Anna reviewed his speech plan and they talked and played for quite a while.<br />
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His words are
emerging and while there are some things he needs to work on he is doing well. We will continue to work on speech with the district but go
back to meet with Anna in 6 months to see if he should start private speech
therapy. She said, “It is fun to see him doing so well.”<br />
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The Nurse Practitioner was next. She went over his overall health history and the big picture stuff. She checked his ears to see how they looked and if his tubes that were put in a year and a half ago were still in. All looked good!<br />
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The Audiologist and a graduate student were the next to visit with Wyatt.<br />
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They checked his ears and did several hearing tests. His ears aren't plugged and the tubes seem to be functioning well. His right ear didn't pass one of the tests so we will schedule a follow up visit with an ENT a local clinic to have that checked out. Wyatt will have hearing tests
every 6 months until he is 5 to make sure everything looks good.<br />
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Dr. Lacey, Wyatt’s plastic surgeon, also stopped by to take a look
at everything.<br />
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He said everything looks good and his scar on his lip looks
great. Wyatt is missing one tooth where his cleft is and Dr. Lacey was stumped by a rogue tooth or bone fragment
emerging from the roof of Wyatt’s mouth. Wyatt's lip, palate and everything else look good so there shouldn't be a need for surgery for a while.<br />
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The dental team came in next.<br />
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Everything looks good with his teeth! We were referred to a pediatric
dentist for ongoing care because they have more experience dealing with little ones
and special cases such as clefts. One of our follow up items is to get him in soon so they can do xrays of the tooth/bone in the roof of his mouth and see about having it taken out.<br />
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The last specialist we saw was Dr. Service the ENT.<br />
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Wyatt's ears were checked for the third or fourth time today and they still looked good. :) He said
Wyatt’s ears look healthy and his nose looks good too. Apparently, he has huge
tonsils. This really isn't a surprise considering what Bella had going on. We will just keep an eye on them for now. He said his tubes are still there and seem like they are working.<br />
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Phew! All Done!<br />
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After meeting with everyone we got a break for lunch while they met to discuss his case.<br />
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We had lunch at Big 10 and then
walked around a bit.<br />
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When we came back from lunch we met with Anna and went through Wyatt's plan. Dr. Anderson heard about Wyatt's bone fragment/spur/tooth and wanted to check out so he
came in to take a look before we left.<br />
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<br />Wyatt was exhausted after meeting with all of his old and new friends and fell asleep within minutes of getting in the car.<br />
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We will be getting a full report in about 6 weeks. It was a long but a very good day. Wyatt was amazing! He was so patient and followed directions. We were so proud of this little man today.<br />
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Jaimie Lopezhttp://www.blogger.com/profile/15381619505371755779noreply@blogger.com0tag:blogger.com,1999:blog-5619010696706045006.post-64054766070847683602014-10-23T09:03:00.001-07:002014-10-23T09:03:11.024-07:00I'm 2!Wyatt is 2 years old today!<br />
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<br />Jaimie Lopezhttp://www.blogger.com/profile/15381619505371755779noreply@blogger.com0tag:blogger.com,1999:blog-5619010696706045006.post-22904155169965652702014-07-27T08:33:00.001-07:002014-07-27T08:33:25.129-07:00Then & NowHere is Wyatt just moments after he was born.<br />
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Here he is 21 months later (18 months post lip adhesion, 15 months post lip repair, 12 months post palate repair).<br />
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<br />Jaimie Lopezhttp://www.blogger.com/profile/15381619505371755779noreply@blogger.com0tag:blogger.com,1999:blog-5619010696706045006.post-68281677695221892532014-06-02T19:42:00.001-07:002014-06-02T19:42:42.007-07:00Wyatt is one and a half!<div class="separator" style="clear: both; text-align: left;">
Our little boy is getting so big. Here is a little about Wyatt and what he has been up to:</div>
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He has a <strong>MIND OF HIS OWN.</strong></div>
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He<strong> </strong>gets into<strong> EVERYTHING</strong>!</div>
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He is a <strong>PICKY EATER</strong>. It takes him a long time to warm up to new foods. He loves crackers, bananas, grapes, peaches, pears and yogurt. Lately we are working on meat and veggies. He will eat them sometimes. ;)<br />
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He talks quite a bit and <strong>MIMICS </strong>everything he hears. He also<strong> </strong>likes to <b>SING</b>. "Let it Go" from Frozen is one of his favorite songs. We will hear "Let it go, let it go..." over and over. "Go" seems to be a favorite word. One of my favorite things is when I ask him if he wants to go somewhere and he replies with, <strong>"Go, Go, Go!"</strong> Other favorite words or sayings are uh-uh, get down, and all done.<br />
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He learned to drink from a <strong>SIPPY CUP</strong> and <strong>STRAW</strong>! This is big milestone for a kid with a cleft. This is at the level of first word and first steps in my eyes.</div>
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He loves to<strong> THROW BALLS </strong>and<strong> </strong>play with <strong>TRUCKS</strong>.</div>
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His <b>BLANKET</b> is his constant companion. He reminds me of Linus from Peanuts the way he walks around with his blanket dragging behind him or slung over his shoulder nuzzled against his face.</div>
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<b>SHOE SHOPPING</b> is not a favorite activity.</div>
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He has <strong>SELECTIVE HEARING</strong>. "Get away from the outlet" means nothing to him but "Let's go for a walk" has him running to the top of stairs doing a happy dance.<br />
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<span style="text-align: left;">Wyatt is such a fun, sweet, and caring little boy and we can't get enough of him. </span></div>
Jaimie Lopezhttp://www.blogger.com/profile/15381619505371755779noreply@blogger.com0tag:blogger.com,1999:blog-5619010696706045006.post-5967718681229857692014-05-31T17:12:00.003-07:002015-01-27T09:46:04.621-08:00Copycat<div class="separator" style="clear: both; text-align: center;">
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Wyatt had his first speech evaluation with Anna at the University of Minnesota yesterday. Anna is the cleft team coordinator at the university and a speech and language pathologist. We have been working with her since we found out about Wyatt's cleft before he was even born. We hadn't seen her for 6 months or so and she was excited to see Wyatt and how he was growing. One of the first things she pointed out was how great his scar looks. :) I asked about all the tissue under his lip and she said that was actually a good thing. They can always take tissue out but it is hard to make up for it when it isn't there. This was reassuring to hear and makes a lot of sense.<br />
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With the appointment right in the middle of nap time and being in a new place Wyatt was pretty quiet at first. Anna played with him with toys and bubbles and got to hear a few words and sounds. To give him some more time to warm up Anna worked with me on some assessments while he played on his own. Anna had a list of words for us to go through to get an idea of how many words he knows. She would say the word and then I would tell her if I had heard him using it. Wyatt was running around the room doing his own thing when we started hearing him copying most of the words she read! We didn't count the words he copied that I didn't think he knew for the assessment but what a stinker! It turns out he has a lot more to say than we knew. I guessed he only had about 15 words but the assessment at the clinic showed at least 40. We just couldn't understand him. He seems to be leaving the consonants out of most of his words but is copying the vowels. When he talks it doesn't sound like anything but gibberish if you don't know what he is doing. Since the appointment I have really picked up on this. He repeats everything we say. Wyatt is also very intentional with his communication. He gesture and and talks in a way that shows you he knows what he is saying.<br />
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Anna gave us a list of goals to work on until our next meeting with her. There are early childhood and other resources available but we are going to start by working with Anna once a month. Wyatt is still really young and he could outgrow or overcome some of this on his own. We could just wait and see but we would rather try to get out ahead of it just in case. There are other resources we could look into if and when we need it. He will have a more formal speech assessment after he turns two. She did say it sounds like his palate is working well. This is a good sign because it means he may not need additional surgeries to help with anything physical preventing his speech from progressing.<br />
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We also got a chance to talk with Anna about Wyatt's eating. He struggled to start eating more solid foods but is getting better and trying new things all the time. Wyatt's issues with food appear to be sensory related. We will continue to introduce new foods slowly. This slow and steady approach seems to be working for him. We don't let ourselves get stressed out about it and introduce foods one at a time. Once he gets comfortable with something we give it some time and then try something else. The first real people food he would eat without gagging and throwing up was crackers. He likes saltines, Ritz and graham crackers. From there we moved to toast and fruits. Right now we are working on some proteins like turkey. It is hard to know how much of his difficulty with solid food is due to the cleft or just a sensory thing for him. Probably a combination of the two. With all the surgeries and other appointments with his mouth he may be a little more sensitive to what goes in there!<br />
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We met with Anna for almost 2 hours! It was really good to talk to her, catch up on what was going with Wyatt, and leave with some specific things to work on with his speech.Jaimie Lopezhttp://www.blogger.com/profile/15381619505371755779noreply@blogger.com0tag:blogger.com,1999:blog-5619010696706045006.post-90597152801520718522014-03-27T11:24:00.000-07:002014-03-27T13:56:49.681-07:00Where we have been the last 5 months?!For the first time since Wyatt was born we are not gearing up for or recovering from surgery. We have only had two cleft related doctor appointments since his last surgery in September. This is very different from the weekly appointments we started out with! From the time we found out Wyatt had a cleft during a routine ultrasound through his last surgery it had consumed so much of our lives. So much time, attention, and worry. Finally, finally this has taken a back seat and we are enjoying it. It is like a weight has been lifted and the sense of relief and freedom I feel is indescribable.<br />
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As everything seems to, our story and my need to document it has evolved. Blogging our story has been very therapeutic for me. Especially in those first months after finding out. While things have slowed down quite a bit Wyatt's cleft is ever present in our daily lives as we continue to work on related issues with feeding and speech. I do hope to post some more updates in the coming weeks.<br />
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Wyatt is almost 18 months old now and busy just being a toddler and getting in to everything. The word "no" means nothing to him. I guess he is just one that wants to figure things out on his own....Jaimie Lopezhttp://www.blogger.com/profile/15381619505371755779noreply@blogger.com0tag:blogger.com,1999:blog-5619010696706045006.post-47937158999860441392014-01-20T12:13:00.001-08:002014-01-21T12:44:03.069-08:00Watch him grow, Wyatt's first year<br />
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<!-- Blogger automated replacement: "https://4.bp.blogspot.com/-dMJDyARENVc/Ut13_wr9w8I/AAAAAAAAA0U/rfvfv2GwBqc/s1600/DSC_0299_edited-1.JPG" with "https://4.bp.blogspot.com/-dMJDyARENVc/Ut13_wr9w8I/AAAAAAAAA0U/rfvfv2GwBqc/s1600/DSC_0299_edited-1.JPG" --><!-- Blogger automated replacement: "https://images-blogger-opensocial.googleusercontent.com/gadgets/proxy?url=http%3A%2F%2F4.bp.blogspot.com%2F-dMJDyARENVc%2FUt13_wr9w8I%2FAAAAAAAAA0U%2Frfvfv2GwBqc%2Fs1600%2FDSC_0299_edited-1.JPG&container=blogger&gadget=a&rewriteMime=image%2F*" with "https://4.bp.blogspot.com/-dMJDyARENVc/Ut13_wr9w8I/AAAAAAAAA0U/rfvfv2GwBqc/s1600/DSC_0299_edited-1.JPG" -->Jaimie Lopezhttp://www.blogger.com/profile/15381619505371755779noreply@blogger.com0tag:blogger.com,1999:blog-5619010696706045006.post-50761872076256680122013-10-23T20:02:00.000-07:002013-10-23T20:02:29.108-07:00Happy 1st Birthday Wyatt!One year ago today on a rainy fall morning we welcomed Wyatt into the world and into our family. This year has flown by. It has been filled with all the adventures of babyhood and more. Making it to this one year mark seems to be a milestone in our journey. We knew this first year would bring the most challenges but we have overcome them all and Wyatt is thriving. I love watching him grow and develop into his own little person.<br />
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Everyday we see more and more of his unique personality coming out. He is so happy! He smiles all the time and when he is excited about something it radiates from every part of him. He is learning and absorbing new sounds all the time and loves to practice. He gets quite the kick out of listening to himself talk. He has conquered sitting up and rolling and crawls at the speed of lightning. I love the way he wiggles his back when getting comfy, snuggles in when he is tired, giggles when he is happy, squeals when he is frustrated (especially when trying to pull those stubborn socks off his feet) and grunts/growls/roars for no reason at all. He interacts more and more with the world and people around him everyday. He especially loves following his big sister around. He likes to play peek-a-boo and I was excited to get my first kisses from Wyatt just his week.<br />
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My heart feels more full than I ever thought possible. Both our children bring us so much joy. I absolutely adore this little guy.<br />
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Happy birthday to my sweet boy. Mommy loves you.Jaimie Lopezhttp://www.blogger.com/profile/15381619505371755779noreply@blogger.com0tag:blogger.com,1999:blog-5619010696706045006.post-89845873962781581022013-09-22T11:56:00.001-07:002013-09-23T06:39:35.758-07:00Cleft Palate SurgeryWe made it through surgery number 3! The surgery itself went well and although the recovery process was a little harder this time Wyatt is doing great. Let's start from the beginning.<br />
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On Wednesday, September 18th Wyatt was scheduled for surgery at 7:30 a.m. We arrived at the hospital at around 5:45. After two surgeries we know the routine. We got checked in, got our security badges and headed up to surgery. Here is daddy and Wyatt in the waiting room.<br />
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We didn't have to wait too long before being admitted to pre op. Wyatt hadn't eaten since 8 p.m. the night before but you wouldn't have known it. He was a champ. It helps that he is a little older now and can go longer in between feedings. He was happy to cuddle with mom and dad and see all the visitors coming in and out, from a comfortable distance of course.<br />
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He kept busy during the long wait playing with the toys at the hospital.<br />
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He loved this puppy toy so much he gave it a big hug.<br />
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They also gave us this mask to play with to help get him comfortable with it. Michael would hold it up to his mouth and blow a little air by his face. Wyatt thought this was a fun game.<br />
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The doctors came in one by one to talk us through the procedures and answer our questions. Dr. Lacey, Wyatt's plastic surgeon, stopped by first. The first thing he said when he saw Wyatt was, "He needs a haircut!" What do you think?<br />
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Dr. Meyer came in next. She is the ENT Wyatt has been seeing for his ears. While Wyatt was under for palate surgery she was going to check his ears and replace his tubes if needed. A couple different members of the anesthesia team also came in. The doctors and nurses signed off on the board as they came in and out. Sandy, the Child Family Life Specialist who was with us through the past two surgeries, was also helping us.<br />
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At 7:22 a.m. we walked Wyatt back to the "kissing corner" for the third time this year and said our goodbyes. We were happy to see him go easily with Dr. Clinton, the anesthesiologist.<br />
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Mike and I made ourselves comfortable in the waiting room keeping a close eye on the doors to the OR and the status monitors.<br />
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Dr. Myer came out a little before 8 a.m. She was done with her part. It turns out Wyatt had a double ear infection but his tubes looked good so she just cleaned his ears and tubes and we will follow up with her in a few months. She let us know Dr. Lacey was getting started.<br />
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A couple hours later Dr. Lacey came out. He told us the surgery went well, gave us instructions for care and talked to us a about next steps. He said Wyatt's lip looks great so he won't need another surgery until his bone graft when he is 7 or 8 years old. If he has trouble with his speech there is a chance he could have surgery to help correct that when he is 4 or 5 years old. We also learned he will have his first speech evaluation at 18 months.<br />
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At 10:13 a.m. Wyatt was moved to recovery and we were brought back to see him. I hate this part. It is hard to see him in pain and confused and disoriented from the anesthesia.<br />
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This time was harder than the previous two surgeries. He was pushing, squirming and trying to roll in my arms. They gave him a little extra pain medicine and that helped to calm him down. I asked the nurse how he did coming out of the anesthesia. She said they had to give him something to relax him so they could move him to his bed after surgery.<br />
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He did take a couple of oz of Pedialyte in recovery which was really good. A little before noon he was admitted to the hospital and we headed up to his room. I was able to carry him to help keep him calm.<br />
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The next 24 hours are a bit of a blur! I will do the best I can to describe what it was like. Poor Wyatt was in so much pain. It took a while to get him comfortable and he would rest or sleep for a couple of minutes but then wake up with the saddest cry until he fell asleep again. We took turns holding him.<br />
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Wyatt's face, lips and tongue were swollen and he had marks in and around his mouth from the procedure. He was very careful when swallowing and you could tell it was very uncomfortable for him. We got a peek inside his mouth and if it felt anything like it looked it was bad. Dr. Lacey took sections from the sides of the roof of his mouth to fill in the gap. The strips on the side will grow back. The doctor said it was a rob Peter to pay Paul kinda deal.<br />
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While in the hospital we had some visitors which was a nice distraction.<br />
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Wyatt started resting for longer periods of time in the evening. After each dose of medicine he would sleep for longer stretches. When it looked like he was finally settling down daddy went home to take care of Bella and get her off to school in the morning. It was just mommy and Wyatt for the night. He was up quite a bit but we did get a couple long naps, quality cuddle time, and caught a movie. </div>
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He has to wear his no no's again. This time he had one on his leg too to keep the IV in. He has done well with the no no's in the past but now that he is mobile these things really get in the way of his fun.<br />
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He was doing better by morning but we had been having so much trouble managing Wyatt's pain and getting him to eat I was surprised we were discharged early Thursday morning. He would only take an oz or so of Pedialyte at a time and refused to take any formula. He felt good enough to play for a bit before needing a rest.<br />
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We got home around noon on Thursday. Wyatt still wasn't eating and just wanted to be held. He did take good naps and slept through the night. His troubles were with the pain and eating. When he wasn't sleeping he just wanted to be held. Luckily grandma came over to help out and take some shifts.<br />
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Wyatt really struggled with eating. He ended up throwing up the little he did eat and I was getting scared.<br />
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I sought out some advice from parents of children with clefts I met through online communities and talked with Anna, the cleft team coordinator at the U of M. A common theme among the advice was to take him off the codeine so we decided to give that a try. We thought this might help with his mood and stomach issues. Going forward we would just use Tylenol to help manage the pain. This seemed to help because by Friday morning you could tell he was feeling better. He even took 2 and a half oz of Pedialyte.<br />
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Soon after that some of his pureed food caught his eye while grandma was holding him in the kitchen. He went crazy like he wanted it so I watered it down with a little Pedialyte and spooned it gently in to his mouth. He ended up eating the whole thing! He still refused to take formula and even Pedialyte through his bottle but he ate his watered down purees very well. This has made a huge difference. Over time I have added Pedialyte, baby cereal and formula to his pureed fruits and veggies. Finally now on Sunday morning I got him to take an oz and a half of formula. Woohoo!<br />
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As far as surgeries go this was definitely the hardest but we made it through. A year ago Wyatt wasn't even born yet and we were thinking of all that would happen in his first year. Now three surgeries have come and gone. I can't believe it. It is strange and exciting to think of all the things that will be more normal for Wyatt now. Soon we will see him eat solid foods with ease and be able to suck and drink through a straw. It's the little things.<br />
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There is a warrior under this sweet baby exterior. Daddy says he does need a haircut though.<br />
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Jaimie Lopezhttp://www.blogger.com/profile/15381619505371755779noreply@blogger.com5tag:blogger.com,1999:blog-5619010696706045006.post-83095334922055824242013-09-17T15:27:00.000-07:002013-09-17T15:27:03.777-07:00Getting Ready for Surgery #3<div class="separator" style="clear: both; text-align: center;">
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Wyatt's palate surgery is bright and early tomorrow morning.<br />
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Dr. Lacey is taking a staged approach to Wyatt's cleft repair and we knew before he was born he would have 3 surgeries during his first year. He had a lip adhesion in February, his lip and nose repair in May and now will have his palate repair.<br />
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Here is the technical part in case you are interested... To repair the cleft palate Dr. Lacey will reposition the tissue and muscle to close the cleft and rebuild the roof of the mouth. Incisions are made on either side of the cleft and a specialized flap technique is used to reposition muscle and the hard and soft components of the palate. The repair is then stitched closed. This will help Wyatt with eating and speech development.</div>
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After tomorrow we should get a break from surgery for at least a few years. This makes me so happy. Both Mike and I are in agreement we just want to get this over with. For some reason I thought things would get a little easier with each surgery but I feel like it gets harder. Each surgery becomes a little more involved and requires a little longer recovery. Wyatt just gets more and more active and understands more and that makes it harder too. We had preop yesterday and the nurses and doctor couldn't even look at him without his bottom lip sticking out. </div>
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All this hasn't been easy but we face each challenge as it comes and keep moving forward. This journey has been made a lot easier with the support of our family and friends. I ask again for you thoughts and prayers as we get ready for surgery tomorrow. </div>
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Jaimie Lopezhttp://www.blogger.com/profile/15381619505371755779noreply@blogger.com0tag:blogger.com,1999:blog-5619010696706045006.post-1393562167077084712013-08-24T14:03:00.001-07:002013-08-24T14:03:58.029-07:00Exclusively Pumping: Hanging up the flangesAfter 10 months of exclusively pumping I've decided it is time to hang up the flanges.<br />
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Hanging up the flanges? This means I am done pumping. (I can't believe I just wrote that out loud. I am done. Done. The idea is still so crazy to me after all these months.)<br />
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What is exclusively pumping? Exclusively pumping, or EPing, is pumping instead of breastfeeding. It means you can not/do not want to nurse but still want to provide breast milk by pumping and bottle feeding. There are a variety of reasons why one would be an exclusive pumper. For me it was because Wyatt has a cleft and was unable to nurse. By pumping I was still be able to provide him with the benefits of breast milk (and save a ton of money on formula!).<br />
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Right after Wyatt was born the nurses rolled in that big Madela pump and I got to work. Those early days were hard. I pumped every 2-3 hours for 20-30 minutes each session. Pump, wash, sterilize, dry, bottle, label, store, repeat. After you factor in time feeding I spent 12 hours each day on this.<br />
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I pumped for 10 months. Wyatt had only breast milk for his first 9 and a half months of life. We only recently started supplementing with formula. These last ten months have gone fast but I still can't believe what a huge chunk of my life I spent pumping. I did the math and I have spent one month of the last ten pumping! I have pumped the last 306 days. I pumped over 1,200 times producing more than 7,300 oz of breast milk. (I pumped 4-6 times a day for the first 6 months, 3-4 times a day the next 3 months and 1-2 times a day the past month.) For over 300 days pumping was the first and last thing I did every day.<br />
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There were some hard days (enter fog of newborn needs combined with lack of sleep, cleft issues, doctor appts, going back to work full time, etc.) but we made it through. I say we because I couldn't have made it this far with out the support of my family and friends. There were many times I dreamed about how nice it would be to quit but I didn't. After a while it just became a part of our routine.<br />
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When I started my pumping journey I didn't have a specific goal in mind for how long I wanted to do it. I figured I would pump as long as it worked and told myself before I started that whenever the time came and for whatever the reason I was going to be open to, accept and let myself be okay with being done. My goal was to make it as long as I could and a variety of factors are telling me it is time to be done.<br />
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Over time I have gradually dropped pumps in order to find more work, life, and family balance and have noticed a gradual decline in my supply. I can't say I didn't grapple with some guilt as I made it so far yet not quite to that golden one year mark.<br />
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When I visualized the end of my pumping journey I saw great freedom and much rejoicing. I am surprised to find myself a little sad. Don't get me wrong, I am so excited to be done but it has been such a big part of my life for the past 10 months and I feel great about being able to do this for Wyatt. I think I am sad because it means my baby is getting older and I know I am leaving this stage of my life.<br />
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I knew Wyatt was going to have to go through a lot in his first year of life and I felt like this was something special I could do for him. Now that all is said and done I feel I have given Wyatt a great start and it has all been worth it. I am proud of what I have accomplished!<br />
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Now, what to do with all my free time...<br />
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I also wanted to say while this path worked for us, every parent should do whatever is best for themselves and their child whether it be nursing, exclusively pumping, formula feeding, or a combination.Jaimie Lopezhttp://www.blogger.com/profile/15381619505371755779noreply@blogger.com1tag:blogger.com,1999:blog-5619010696706045006.post-29270134457859310982013-08-05T18:58:00.000-07:002013-08-05T18:58:01.062-07:00First glimpses of teethA cleft lip and/or palate can impact the development of teeth. If and to what extent depends on the type and extent of the cleft. Missing teeth, small teeth, extra teeth, and crooked teeth are common. Because Wyatt has a complete unilateral cleft lip and palate we knew his teeth would be involved. More than likely he will at least be missing a tooth (the lateral incisor where his cleft runs through). Really, we have no idea yet the extent of Wyatt's dental issues. We will work closely with our dentist and the orthodontist from our cleft team on this.<br />
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All of this has added a layer to the excitement of baby's first tooth. It will be interesting to see how his baby teeth and permanent teeth come in. Wyatt's front two bottom teeth came in at 7 months old. This was at the same time his big sister (not cleft affected) lost the same two teeth!<br />
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Today we were surprised to find Wyatt's central incisor (front tooth) next to his cleft came in! By the looks of it it came in a few days ago. There is a lot of extra tissue where his cleft lip was repaired and this part of his gum line isn't very visible so I am not surprised we missed it.<br />
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All his teeth look great so far.<br />
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Surgery to close Wyatt's palate will be September 18th. Then we should get a break from surgery for a while.<br />
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For more information on dental care for a child with a cleft lip and palate:<br />
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<a href="http://www.cleftline.org/what-we-do/publications/fact-sheets/dental-care-for-a-child-with-cleft-lip-and-palate/">http://www.cleftline.org/what-we-do/publications/fact-sheets/dental-care-for-a-child-with-cleft-lip-and-palate/</a><br />
<br />Jaimie Lopezhttp://www.blogger.com/profile/15381619505371755779noreply@blogger.com0tag:blogger.com,1999:blog-5619010696706045006.post-71850121657907762592013-07-07T09:35:00.001-07:002013-07-07T09:35:26.051-07:00This time last year<div dir="ltr" style="right: auto;">
<span id="yui_3_7_2_16_1372719072476_50" style="font-family: inherit; right: auto;">Last July we learned our son Wyatt has a cleft lip and palate. I wasn't with my husband at the time I got the call from the doctor with the results of our 24 week ultrasound. I remember calling him and trying to choke out the words through my tears. The next couple of days were extremely difficult. I felt sad, angry, guilty... there were a lot of tears. Everything with the pregnancy had been normal to this point. Now we were dealing not only with a birth defect but a very visible one. I was grieving the loss of the "perfect" baby every parent expects. </span>I hurt for us and for him. For <span style="font-family: inherit;">the procedures he would have to endure and the adversity he would face.</span><br />
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<span style="font-family: inherit;">When we first found out about Wyatt's cleft my knowledge of what a cleft was came from infomercials. Looking back I realize I knew almost nothing. <span id="yui_3_7_2_16_1372719072476_165" style="right: auto;">As a way of coping I threw myself into research and planning. It helped me feel more comfortable with what we were dealing with but also was overwhelming at times as I realized how much was involved with a cleft. </span></span><br />
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<span style="font-family: inherit;"><span style="right: auto;">We were connected with a cleft team right away. It was a comfort to meet and talk with them about what treatment would look like and develop a plan for the initial obstacles we would face. They provided us with a lot of resources and information. Over time </span><span style="right: auto;">I have also found websites, blogs and support groups on Facebook that have been extremely helpful.</span></span><br />
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It felt like quite the roller coaster for a time between when we found out about the cleft and when Wyatt was born. As we got closer to our due date the world righted itself again. We were anxious and excited to meet our little boy. There was some anxiety as we anticipated seeing the cleft for the first time but it really wasn't that big of a deal after all. I instantly fell in love with every part of him, even his cleft.<br />
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Wyatt's cleft has been a part of our lives for one year now. Looking back I can't believe all that has happened in such a short amount of time. It has not been an easy year. We have gone from learning Wyatt has a cleft to understanding what that really means. The first months after Wyatt was born were the hardest. There were many challenges such as a lot of doctor appointments, feeding and pumping, the NAM and taping, and surgeries to deal with. Things have now settled down quite a bit. These days we are busy enjoying life with our two beautiful children.<br />
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Wyatt has settled in nicely to his place in our little family. There is a brightness that beams from his big brown eyes and I can't imagine our lives without this happy little guy. What a difference a year can make.<br />
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Go Twins!<br />
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Jaimie Lopezhttp://www.blogger.com/profile/15381619505371755779noreply@blogger.com0tag:blogger.com,1999:blog-5619010696706045006.post-10300081467614186022013-05-28T08:20:00.001-07:002013-05-28T08:20:52.071-07:00Feeding: Solid Foods<div class="separator" style="clear: both; text-align: left;">
We waited to introduce solid foods until Wyatt was past his 2nd surgery at 6 months. We could have started before surgery but I didn't want to deal with starting for a couple of weeks and then have the interruption of surgery. We cheated a little by putting cereal in his bottles starting at 4 months. This was at the recommendation of his pediatrician. We thought it might help with his reflux and weight. Well, he still spit up a ton but I am still glad we tried it. It filled him up more and helped keep his weight up for surgery. </div>
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Now that we are past surgery it was time to give it a go with solids (pureed foods). Wyatt really wasn't sure what to think! He was really confused and unsure about it all. We started with rice cereal and peas. He wasn't sure what to do with the spoon and sometimes lets the food pile up in his mouth without swallowing. It has been about a week and we are still practicing. He is getting better and better. So far he has had peas, bananas and apples.</div>
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For the most part feeding is the same for a baby with a cleft as without but there are some differences. The biggest thing is he will have some come through his nose or get stuck. Because of this, Anna (previously introduced as the coordinator for out team and Speech and Language Pathologist) told us it may be helpful to start experimenting with the food being a little thinner and then try getting thicker as we go. Some prefer thinner and others prefer thicker. She said to start out with small bites and then work on bigger bites as he gets better. Just like babies without clefts we try one food for a few days and then add another. Another thing I tried after seeing it posted on a cleft board was feeding him with the spoon upside down so he could use his tongue to lick it off. So far this doesn't seem to be his favorite. ;) </div>
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Here is a picture of Wyatt during our first attempt at solids.</div>
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<span style="text-align: left;">Do not be alarmed by nasal regurgitation! Most babies with a cleft have some come out their nose at first but it gets better and better even without the palate fixed by using their tongue. Here is Wyatt and his river of peas. </span></div>
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These pictures are from our second try. He is a little more frustrated with the whole process.</div>
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Getting messy and having fun with it! He is learning. </div>
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Our next big step with feeding will be introducing a cup but there isn't a rush for this. Some doctors want them to be using a cup before palate surgery but Wyatt's doctor said he can still use a bottle. We could try a cup closer to 8 months but I think we will hold off. He has enough to deal with! When we are ready we will try different cups to see what works best. We won't use anything with a valve as he still can't suck.</div>
Jaimie Lopezhttp://www.blogger.com/profile/15381619505371755779noreply@blogger.com2tag:blogger.com,1999:blog-5619010696706045006.post-60173777705123011642013-05-18T11:18:00.000-07:002013-05-18T11:18:29.751-07:00Post Lip Repair UpdateWyatt had a post-op appointment with Dr. Lacey at Cleft Clinic at the U of M on Wednesday. It was a quick meeting. The doctor looked at how Wyatt's lip and nose were healing and shared more information with us on next steps. Wyatt will have his palate repaired in 4 to 6 months. He will meet with Dr. Lacey again before then and also the ENT in case any adjustments are needed with his ears.<br />
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Here are some pictures of Wyatt one week post-op:<br />
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Today is a big day. It has been 10 days since Wyatt's lip and nose repair and his glob (glue, scabs, boogers) finally fell off! Waiting for this has been like waiting for Christmas morning.<br />
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As you can see he is doing great! He has a little dimple on the top of his nose from where the doctor put a stitch to try to center the nose. Dr. Lacey said that should soften over time. Also, the scar between his lip and nose will change over time. It will tighten and pull up and then eventually relax again.<br />
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As I write this Wyatt is no no free and bouncing around in his activity saucer squealing and laughing.<br />
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:)Jaimie Lopezhttp://www.blogger.com/profile/15381619505371755779noreply@blogger.com0tag:blogger.com,1999:blog-5619010696706045006.post-79961312717381372342013-05-09T18:49:00.001-07:002013-05-11T07:34:52.266-07:00Wyatt's Lip & Nose Repair (and tubes too!)Wyatt's second surgery went great. He had a lip adhesion in February to prepare for his lip and nose repair and the actual lip and nose repair was yesterday. From what we can tell Dr. Lacey did a fantastic job. Here is the story of Wyatt's second surgery:<br />
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Wyatt's surgery was scheduled for noon and we were told to arrive at the hospital at 10 a.m. We pulled up to valet parking at the door with the giraffe just like last time. I really appreciate how easy they make everything and how kid friendly they are at the University of Minnesota Amplatz Children's Hospital. I know it's a children's hospital but the experience is still new to me and I think it is very cool. (I had a near miss with a tot on a trike in the hall on my late night run to the vending machine.)<br />
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Once inside we visited registration, security and then headed up to Children's Surgery and pre op. We got Wyatt all ready for surgery and then had to wait until it was time to bring him to the operating room. Waiting in pre op was probably the worst part of the day. Wyatt did great but Mommy and Daddy were anxious about surgery and trying to keep him distracted and entertained (he couldn't eat anything after 8 a.m.). We waited almost 2 and a half hours. I had lots of time to take pictures. <span style="text-align: center;"> </span><br />
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While we waited the doctors and nurses stopped in to introduce themselves. Dr. Lacey autographed Wyatt's cheek again.<br />
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He was awake most of the time but fell asleep just before they were ready to take him to the operating room.<br />
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Soon it was time to go. We walked with him as far as we could go and then said our goodbyes.<br />
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We were told it would take approximately 2 hours and 40 minutes for the lip repair and tubes. It was 12:21 when he went in so we decided to grab lunch in the cafeteria and walk around the hospital a bit. When we got back to the children's surgery waiting area at 1:20 I was getting ready to pump in one of the consultation rooms when the assistant found me and said I had a call from the operating room. Mike wasn't with me and a million thoughts were running through my head. Luckily, all was well they were just calling to let us know they were just getting started because it took a while to get everything set up and Wyatt to sleep.<br />
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Then we started another period of waiting.<br />
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We anxiously watched the monitors that updated us on any changes in Wyatt's status. We weren't expecting to hear from anyone for at least a couple of hours but after only one hour (at 2:20) Dr. Lacey came out and said he was done and everything went well. He went over a few basics and made a comment about Wyatt's nose looking "totally different." My focus had been on getting Wyatt through surgery and I forgot about the impact this surgery would have on his appearance. Dr. Lacey's comment reminded me of this. We were anxious to see him but they were prepping for Dr. Meyer to do her part next, put tubes in Wyatt's ears.<br />
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At 3:17 Wyatt was moved to recovery. Hooray! We couldn't wait to see him.<br />
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I mentioned this in my post from Wyatt's last surgery but seeing my baby in recovery is incredibly difficult. Wyatt was sleeping when we first saw him. They had just given him some morphine because he was having a pretty hard time. He didn't sleep for very long and woke up confused and in pain. It was hard not being able to comfort him.<br />
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We weren't even able to hold him because they were going to be moving us soon and didn't want us to get too comfortable. :( It was horrible. They ended up giving him another dose of morphine and some Tylenol while we were there. He did take a little Pedialyte. After about and hour and a half in recovery we headed to his room. The nurses were great in getting us settled in. They ordered some toys and a swing to help make Wyatt comfortable. He fussed and cried quite a bit. They gave him some more pain medication and Tylenol. We did see a few moments of our happy, smiley Wyatt. His face was swollen and his lip and nose are bruised.<br />
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The swelling has gone down in his face and eyes but his lip and nose look worse today. I will spare you some of the more gory pictures.<br />
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He is having a hard day today. You can tell he is in pain and he isn't eating much. We have to keep a close eye on him so he doesn't do anything to accidentally hurt himself. He has his no no's again but is having a harder time being restrained this time around. I think this is because he is older, more active, and has new skills he wants to practice. He is frustrated he can't put his fingers in his mouth, play with his toys or roll over.<br />
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His lip and nose look great and we are anxious to see what he will look like as the swelling goes down and he begins to heal. Mike and I talked about the ever changing face of Wyatt. It is like we get to meet our baby for the first time over an over again. I feel like he looks so different this time. Even Brenda (Great Grandma) made a comment about it. We both think he looks older.<br />
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When I reflect on how things have gone these past two days I think some things were easier this time and some things more difficult. We were more familiar with the hospital and the process and that helped a ton. The difficult part is this surgery has been harder on Wyatt. Right now we are focused on doing the best we can to keep him comfortable. We are holding him quite a bit and trying to distract him with toys. He slept good last night and has taken a few short naps today.<br />
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We will have a post op appointment with Dr. Lacey next week and Dr. Meyer in 6-8 weeks. His next surgery will be his palate repair. We will be able to get the date on the books soon. It will be sometime between 10 and 12 month old.Jaimie Lopezhttp://www.blogger.com/profile/15381619505371755779noreply@blogger.com1tag:blogger.com,1999:blog-5619010696706045006.post-53060629655067895132013-05-04T11:16:00.000-07:002013-05-04T11:16:13.031-07:00Getting ready for surgery #2Wyatt is scheduled for his lip and nose repair on Wednesday, May 8th at noon. This is the real deal as far as his appearance goes. A lot of people have asked me if it will be easier this time around since we have been through it before and the answer is no.<br />
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It will not be easier. For me it will be harder. I didn't know what to expect last time so I went through the motions of the day and dealt with each emotional challenge as it came; the anxiety of prepping and leaving for the hospital, saying goodbye to Wyatt's wide smile, distracting him when he couldn't eat before surgery, watching the operating team carry my baby away, waiting anxiously during surgery, and seeing him confused and in pain in recovery. Now I know how hard it is going to be.<br />
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But we will once again be brave. We will all be brave for our sweet Wyatt. Please keep us in your thoughts and prayers this week.<br />
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Jaimie Lopezhttp://www.blogger.com/profile/15381619505371755779noreply@blogger.com0